Human Participants in Evidence-Based Nursing Practice

Human Participants in Evidence-based Nursing Practice

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Human Participants in Evidence-based Nursing Practice

Introduction

        Though crucial in progressing the field of critical care in medicine, clinical trials registering intensely ill individuals are linked to problems not seen in studies involving chronic diseases. Situations leading to intensive care unit admission are usually rash and fatal, and the care afforded highly technological (Christensen, Jayarante, Roberts & Kardia, 2010). Many patients and their family members miss the opportunity to gain education relating to the nature of the disease process, the treatment alternatives, or the expected outcome of a certain form of treatment. Moreover, patients recovering in ICUs are usually debilitated and thus not able to give informed consent allowing their research participation.

        Some therapies have to be administered fast after diagnosis. To enroll gravely ill patients in quantitative studies, health practitioners have to obtain permission from surrogate decision-makers, most of whom face complex medical issues for the first time (Christensen, Jayarante, Roberts & Kardia, 2010). A collection of genomic specimens make the complexities even more for such individuals. In the article focused on, the health practitioners wanted to investigate the understanding of genomic concepts by surrogate decision makers for ill patients and to deliberate on the impact of the level of genomic literacy in the conduct of clinical investigation (Christensen, Jayarante, Roberts & Kardia, 2010).

Methods

Recruitment and SDM Sample

        The findings recovered by collecting the data were a part of the effort to figure out SDM attitudes with relation to severe disease clinical investigation. The participants here were recruited from the operating and clinical ICUs of a couple of academic media hubs: Barnes-Jewish Hospital in Missouri and Parkland Hospital in Texas. Members eligible to take part in the study were surrogate decision makers for adult ICU patients who had an acute respirational failure; participants received a $50 honorarium and provided informed consent to the study (Christensen, Jayarante, Roberts & Kardia, 2010).

Data Collection

        Over a seven-month period, data was collected by the authors, and focus groups were carried out in conference rooms linked to the ICUs, in which the loved ones of the SDMs received care. With their basis of themes related to genomic mastery, FG study guides were established. There were two facilitators, AC, and ES, whose duty was to moderate all sessions (Freeman et. al, 2012). FGs were started through the stimulation of respondents’ first considerations when presented with the words “genetics” and “genes.” Following this period of unrestricted correlation, the architect asked for participant’s reactions after a small overview of elementary genetic concepts, applications that have recently emerged, and held worries based on the usage of genomic figures (Freeman et. al, 2012). With eleven at BJH and nine at PH, twenty FGs took place, taking in 74 SDMs. The participants, whose mean age was 48 (±1.7) years, were mostly female, English-speaking, and portrayed long-term relations with the people they loved (Freeman et. al, 2012).